This Week in Neuroblastoma – 8/27/12

Ezra’s birthday is this Friday (Aug 31) – he’d have been 4 years old. We miss him.

Here’s this week’s links…

Kids – Why We Fight

Sarah Smith

Sarah Smith, a stage 4 neuroblastoma survivor, recently celebrated her 17th birthday! Here’s to many more stories like Sarah’s… smithellaneous.com.

Non-Profits / Events / News

Neuroblastoma Treatment Tough to Find in the UK

UK families of neuroblastoma patients (over 100 kids a year are diagnosed with nb in the UK alone) are finding it hard to get treatment. The NHS (National Health Services) is not yet approving various treatments which are available in the US and increase survival rates 25%. Throughout the This Week in Neuroblastoma series, we’ve seen many families who have been forced to raise funds to be treated in the US. guardian.co.uk

NB Foundation to be Supported at Australian Grand Prix

An Australian nb foundation, You Are My Sunshine, has been selected as the official charity for the 2012 AirAsia Australian Motorcycle Grand Prix this October. The foundation was started in honor of Kahlilla Donahoo, who died from neuroblastoma in 2008 when she was 5 years old. paddocktalk.com

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