Events Blog

  • 23 Apr

    This Week in Neuroblastoma – 04-23-14

    This week we are excited to share some amazing neuroblastoma research articles that have shown positive and optimistic results!

    We also have numerous fundraising events to share as well as one family’s desperate plea to the public for donations to their daughter’s potentially life-saving cancer treatment. If at any time you are able to donate to any of the children we mention in these weekly newsletters, please do so as there are many families like the Simpson family who desperately need your financial support. As always, thank you for your continued support and love for Because of Ezra.

    Here’s this week’s links…

    Kids – Why We Fight

    Oscar Knox is moved into hospice for full-time care

    The courageous 5 year old neuroblastoma fighter, Oscar Knox has been moved to the Northern Ireland Children’s Hospice for full-time care. Oscar has been placed on extremely high doses of diamorphine to give him some comfort from his quickly spreading cancer. Please take a moment and lift Oscar and his family up in prayer during this painstaking time.irishmirror.ie.

    Non-Profits / Events / News

    Anticancer activity of liposomal bergamot essential oil on human neuroblastoma cells

    Citrus extracts, particularly bergamot essential oil (BEO) and its fractions, have been found to exhibit anticancer efficacy. But due to poor water solubility, low stability and limited bioavailability BEO has not been able to be used in cancer therapy. Fortunately, researchers have been able to formulate BEO liposomes that improve the water solubility of the phytocomponents and increase their anticancer activity in vitro against human SH-SY5Y neuroblastoma cells. We are looking forward to learning more about BEO in the near future!aromaticscience.com.

    Stage 4N neuroblastoma tumors may require less intensive therapy

    Patients with neuroblastoma who had metastatic disease limited to distant lymph nodes demonstrated improved outcomes and therefore may be eligible for less intensive therapy compared with other patients with stage IV disease, according to retrospective study results. Researchers were able to gather information on 2,250 patients who were diagnosed with stage IV neuroblastoma from 1990-2002. Of this data obtained, patients with metastatic disease that was limited to the distant lymph nodes (4N disease) demonstrated significantly improved 5-year EFS (77% ± 4% vs. 35% ±1%) and 5-year OS (85% ± 3% vs. 42% ± 1%) compared with other patients with stage IV disease (both, P˂.001). This is very promising research!healio.com.

    Fighting Neuroblastomas by Blocking Their DNA Replication, Repair

    A peptide compound known as R9-caPep developed by City of Hope scientists may improve neuroblastoma survival rates which are currently around 40 to 50 percent. R9-caPep works by targeting and disrupting proliferating cell nuclear antigens (PCNA), proteins that are essential in DNA synthesis, replication and repair. Furthermore, R9-caPep was particularly effective on cancer cells with an amplified MYCN gene, which is linked to more aggressive and higher-risk neuroblastomas. Again, we look forward to future results of these promising findings.newswise.com.

    Making advances in pediatric cancer

    The Helen DeVos Children’s Hospital in Western Michigan has one of the largest children’s cancer treatment programs in the Midwest. Helen DeVos Children’s Hospital is part of a NMTRC Symposium happening April 27 – 29 in Grand Rapids. They will be discussing neuroblastoma, which is a type of pediatric cancer that has a high rate of relapse. This should be an incredibly amazing and educational conference!woodtv.com.

    Research and Markets: Global Neuroblastoma Clinical Trials Review 2014 – Analysis of 9 Companies

    Research and Markets recently announced the addition of the “Neuroblastoma Global Clinical Trials Review, H1, 2014,” report. This review provides information on Neuroblastoma clinical trial scenarios and provides elemental data related to these clinical trials. For more information visit http://www.researchandmarkets.com/research/lbvc8f/neuroblastoma businesswire.com.

    Bruised and scratched but proud to have done it for Reece

    Battered, bruised, and slightly muddy, Team Dynamo took on the Dirty Dozen – an 15-obstacle race set in a muddy field – to raise funds for the Royal Marsden hospital, where 11 year old Seasalter schoolboy Reece Puddington was treated when he was first diagnosed with neuroblastoma. Reece’s cancer has now spread to his bone marrow, skull, pelvis and shoulders and doctors have said there is little more they can do for him. Team Dynamo’s fundraising efforts resulted in more than £700 for the hospital. For more information search for Reece’s Retreat or Reece Puddington appeal on Facebook.canterburytimes.co.uk.

    RAF Leeming family’s desperation as fundraising for Fraja dries up

    Funding is not only crucial for researching childhood cancer, it is also crucial for families in the midst of the battle and for one such family, donations have slowed to a trickle. The parents of 6 year old neuroblastoma fighter Fraja Simpson are making a desperate plea for supporters to continue to donate in the case that Fraja relapses – which nearly 80% of neuroblastoma patients relapse- thus requiring abroad treatment. “When a child looks sick that’s when people are most supportive. But when neuroblastoma comes back, it comes back quickly with a vengeance” stated Mr. Simpson. Please consider donating to Fraja’s treatment. Any amount you can give will greatly be appreciated. For details of how to get involved, visit facebook.com/frajaellieappeal.thenorthernecho.co.uk.

    Princess Lacey’s life celebrated at Michigan State

    More than 2,500 people filled the Michigan State Breslin Center to honor and remember the always smiling 8 year old “Princess” Lacey Holsworth on Thursday, April 17th. Beautiful pictures slowly flashed on the scoreboard and a 45 minute tribute video was played during Lacey’s memorial ceremony which included a recorded message from Lacey’s #1 fan, Michigan State’s star player Adrian Payne. “She had such an impact on everybody as you can see based on the turnout,” stated Michigan State player Travis Trice. “She had a way of bringing everybody together.” We continue to pray for the Holsworth family.sfgate.com.

    Fourth Annual Tucker’s Trek 5K And One-Mile Fun Run Is May 18

    The fourth annual Tucker’s Trek 5K and one-mile fun run benefiting Emily’s Power for a Cure Neuroblastoma Foundation takes place Sunday, May 18, at 2 p.m. at Baylor’s new Tucker Hunt ’16 Memorial Lacrosse Field. Tucker’s Trek was created after Mr. Tucker learned of Emily and her battling with neuroblastoma and he took it upon himself to raise awareness and funding for Neuroblastoma research. For more information or to register visit https://www.emilyspowerforacure.com/www/docs/100.71/tucker-trek-5k-registrationchattanoogan.com.

    Parents of brave girl, 5, tell of their devastation as her cancer returns

    The parents of 5 year old neuroblastoma fighter Summer Allen dreadfully announced on Friday that Summer has relapsed. The Allen family is now trying to quickly raise £500,000 for possible medical help abroad as treatment options are not currently available in the UK. Summer’s mother Sarah details how crushed the family is to learn that her cancer came back, “It has been very hard, Summer’s cancer was stable, but for it to show its ugly face again hit us very hard. We really wished it was going to stay stable for longer.” The family is being supported by the Families Against Neuroblastoma charity, which is backing the appeal which currently stands at just over £17,000. To help with the fundraising, visit justgiving.com/summer-allen-appeal, text SUMM95 and your amount, between £1 and £10, to 70070 or contact the family via the Summer Allen Facebook page. thetelegraphandargus.co.uk.

    Handbags sale for neuroblastoma scheduled for May

    The Team 4 Hope is hosting its third annual Handbags For Hope at the Prince Albert Golf and Curling Club on May 3 from 1 to 4 p.m. All handbags are gently used and donated to be sold to raise money for neuroblastoma research. Last year, the event raised $7,900 and Team 4 Hope are aiming to raise even more this year! We hope the event is a great success!paherald.sk.ca.

    13-year cancer survivor selling polka dots for cancer

    There’s a white Chevy Blazer driving around Park Rapids with multi-colored polka dots all over it and this vehicle could make a difference in a cancer fighter’s life! Cole Bethel, a 7th grade student at Century Middle School and 13-year Neuroblastoma cancer survivor, decorated his mother’s truck to help raise awareness and funding for cancer. Cole has set a goal of selling 1,000 polka dot spots at either $5 or $10 each. Once purchased, they can be placed anywhere (legal) on his mother’s car, and she will drive around as a daily promotion for their cause. Half of the proceeds will go to the Relay for Life in Park Rapids (at which Cole will be presenting a check) and the other half will be sent to the Roger Maris Cancer Center in Fargo. Specifically, it will go to supporting and comforting those receiving treatment for cancer under Dr. Nathan Kobrinsky – Cole’s doctor. For more information, follow the cause or to purchase a polka dot, visit http://polkadotmomscar.blogspot.com/parkrapidsenterprise.com.

    Community comes together for ‘Strides for Stella’

    Strides for Stella was organized by 20 Florida Gulf Coast University students to raise awareness and funding for 2 year old, Stage IV Neuroblastoma fighter Stella Frattarelli. The goal of this event is raise money to help the family with their medical expenses, gas, food, child care, deductibles, and medication. We want to give a huge “Thank you!” to those 20 students who are making a significant difference in the Frattarelli family’s life, as well as neuroblastoma families nationwide! You all are making an incredible difference!paherald.sk.ca.

    The Isabella Santos Foundation Now Looking for Part-Time Employee to Handle Projects This Summer

    Do you live in the Charlotte, North Carolina area? Looking for a rewarding part-time summer job? Want to raise awareness and funding for neuroblastoma research? Well, this article is for you! The Isabella Santos Foundation is seeking a compassionate part-time employee to handle an exclusive project, The Isabella Santos Foundation’s 7th Annual 5k for Kids with Cancer. This short term opportunity requires a 10-20 hour work week from the months of May through September at a rate of 10-dollars per hour. Those interested in the position must be experienced and active on social media, as well as use their background to build an auction committee with a team of volunteers. For more information, including how to apply for this position, please visit http://www.isabellasantosfoundation.com/ digitaljournal.com.


    You can sign up to receive these weekly articles in your email. Sign up below…


    Read more
  • 15 Apr

    This Week in Neuroblastoma – 04-15-14

    ”I alone cannot change the world, but I can cast a stone across the waters to create many ripples” ~ Mother Teresa.
    Without all of you casting a single stone across the waters, many of these children would not be able to receive potentially lifesaving neuroblastoma treatments. We love hearing stories of selfless acts of fundraising and head shavings! Thank you for your continued support!

    Here’s this week’s links…

    Kids – Why We Fight

    Non-Profits / Events / News

    ‘Spring Fling’ at City Center on Saturday, April 12, for “Warrior” Wes Pak, neuroblastoma patient

    Wes Pak,8, was diagnosed with stage 4 neuroblastoma in 2011 when he was 5 years old. After remaining in remission for 2 years, Wes relapsed in February of this year. To assist the Pak family with their medical expenses, friends and family members are coming together for “Spring Fling 2014.” There will be a face painter, a balloon animal maker, and live music from Josh Meeks and finger-picking world champion Matt Thomas. We hope you have a wonderful turnout! dailypress.com.

    Micah Ahern channels superpowers to help TCU baseball team

    We shared with you the story of Micah Ahern, 5, who was diagnosed with stage IV neuroblastoma when he was only 3 years old last week. Micah’s story broke earlier this year when he became an honorary member of the TCU baseball team. Micah had a signing ceremony with TCU head coach Jim Schlossnagle and his players to become TCU’s first recruit in the class of 2027. Micah was linked to the TCU baseball team to fulfill one of his wishes through an organization called Team Impact. Micah now attends as many TCU baseball games as he can, and he even threw out the first pitch in the season-opening series. Micah is also raising money and garnering support through his Facebook page “Praying for Micah Ahern.”collegesportsblog.dallasnews.com.au.

    Staff raise funds for Northallerton girl battling rare form of cancer

    Staff members at Darlington Building Society are raising funds in support of 11 year old Gaby Alderson who was diagnosed with neuroblastoma with MYCN amplification in September 2013. Gaby’s mother is trying to raise £500,000 to fund Gaby’s treatments. Manager Kayleigh Turner said: “After hearing about Gabrielle’s brave battle with cancer, we wanted to do something to show our support.” The staff successfully raised £200; great work! thenorthernecho.co.uk.

    No hair Claire raises cash for Summer’s cancer fund

    Claire Shields, who works at Castlefields Infant School in Rastrick, took on a challenge to help fund treatment for five-year-old neuroblastoma fighter Summer Allen. The challenge? Shaving her head! Summer’s mother Sarah was greatly touched by Claire’s brave act and the donations that followed saying, We are so grateful for the support and donations from the school.” To donate, please visit www.justgiving.com/summer-allen-appeal.brighouseecho.co.uk.

    Young basketball fan’s memorial set for next week

    After sharing the heart wrenching news that their beautiful 8 year old daughter Lacey Holsworth passed away from neuroblastoma, the Holsworth family is asking that people attending her memorial service next week wear bright colors and smiles in celebration of her life. Lacey’s Celebration of Life will take place Thursday, April 17, 2014, at 6pm at the Breslin Center. Our hearts remain with the Holsworth family.sfgate.com.


    You can sign up to receive these weekly articles in your email. Sign up below…


    Read more
  • 11 Apr

    This Week in Neuroblastoma – 4/10/14

    With an extremely sorrowful heart we must share that the loveable “Princess” Lacey Holsworth passed away Tuesday night. Our deepest sympathies are worth the Holsworth family. Because of Ezra is dedicated to continuing the battles of Ezra, Lacey, and other children battling neuroblastoma and other childhood cancers.

    Here’s this week’s links…

    Kids – Why We Fight

    Lacey Holsworth, 8, dies of cancer

    ”Princess Lacey” Holsworth, 8, who captured the heart of the Michigan State basketball team and star forward Adreian Payne has tragically passed away on Tuesday night after a bold battle against neuroblastoma. “Words can’t express how much I already miss Lacey,” Payne said in a statement. “She is my sister, and will always be a part of my life. She taught me how to fight through everything with a smile on my face even when things were going wrong. I’m a better man because of her.” Our thoughts and prayers are with the Holsworth family.espn.go.com.

    Oscar Knox: Messages of support flood in as family reveals his health has got worse

    Oscar Knox, 5, and his family announced via Facebook and Twitter that Oscar’s health is quickly deteriorating, he has exhausted all medical treatment options and is in the pain management phase of his battle with neuroblastoma. Since this devastating announcement, messages from around the world have been flooding into the family. Oscar’s parents Stephen and Leona run a blog and fundraising campaign The Wee Oscar Knox Appeal. Please keep the Knox family in your prayers as they manage Oscar’s pain and prepare for his passing. belfasttelegraph.co.uk.

    Non-Profits / Events / News

    Ultrastructural features of neuroblastic tumours in relation to morphological, and molecular findings; a retrospective review study

    A new study was conducted to examine and compare the ultrastructural features of high-risk MYCN amplified neuroblastomas, with lower-risk non-MYCN amplified tumours. Results from this study revealed that is a relationship between ultrastructural features in neuroblastoma and MYCN status, although with marked overlap between groups. We hope this study enlightens researchers as to how neuroblastoma functions and can be better treated and eventually cured.7thspace.com.

    A great day for a run

    Over 700 people laced up their running kicks and hit the pavement for the Fun Run for Local Kids. This year’s event was dedicated to three families: the Johnson, Tilley and Millier. One of the children, Rylea Johnson, just 3 years old, is battling neuroblastoma. All money received from the run will go towards the families of three local children. gippslandtimes.com.au.

    Dance of Hope April 19

    The 6th Annual Dance of Hope will be held on April 19, 2014. All proceeds from this event will be donated to the Frank Nabert family of Port Hope whose 14 month old son is fighting neuroblastoma at Toronto’s Hospital for Sick Children. We hope there’s a great turnout for this event!northumberlandtoday.com.

    Differentiation therapy holds promise as a targeted therapy for pediatric neuroblastoma

    New research was conducted to study the role of microRNAs in regulating neuroblastoma development. Results from this research are promising for finding new therapeutic possibilities for neuroblastoma patients. This new approach to cancer therapy has fewer toxic side effects, and gives hope for a cancer treatment that is gentler on young bodies. But so far only a few differentiation agents have been successfully used to treat neuroblastoma, and more than half of the young patients treated with such agents still see their cancer return. We look forward to further investigation and research on microRNAs and are extremely hopeful for these new therapeutic treatments for children battling neuroblastoma.oncologynurseadvisor.com.

    Point Cook: The world says happy birthday

    A couple weeks ago we shared that neuroblastoma fighter Rafael Moraes only wanted birthday cards for his upcoming 10th birthday. Well, people heard him; more like 7,000 people heard him! Rafael received well over 7,000 birthday cards! Cards flooded his mailbox from Canada, America, England, Brazil, Germany and all over Australia. This is just absolutely amazing! We hope you had a wonderful birthday, Rafael!maribyrnongweekly.com.au.

    Upper Dublin couple sets goal to raise $1 million in son’s memory

    Tosha and Chad Morris lost their 4 year old son, Gavin to neuroblastoma on March 10, 2014. Since Gavin’s passing, his parents have set a goal of raising $1 million for neuroblastoma research through the Alex’s Lemonade Stand Foundation. As of April 1, the Gavin Strong Fund for Neuroblastoma Research has raised over $13,500. To find ways to donate to the cause and help Tosha reach her goal, visit the Gavin Strong Fund for Neuroblastoma Research page at http://www.alexslemonade.org/campaign/gavin-strong-fund-neuroblastoma-research, the Facebook page at https://www.facebook.com/groups/begavinstrong/ or Gavin’s website at http://www.begavinstrong.org/. montgomerynews.com.

    Parents of toddler battling rare cancer not giving up hope

    Cheyenne Zwicker, 2, from Irma, Alberta has been battling neuroblastoma since October 2013. Cheyenne’s mother, Mandy noticed a lump near Cheyenne’s left hip. After the discovery of Cheyenne’s cancer, her parents were given two options: palliative care or continuing with chemo, which they were reportedly told would have a very low likelihood of survival. However, her parents were not satisfied with these options and are looking at an alternative treatment in California, and trying to raise $29,000 for it. To learn more about Cheyenne and to follow her journey, visit her Facebook page at https://www.facebook.com/SupportForCheyenne .globalnews.ca.

    High hopes that Sam is finally back on the road to recovery

    The Bradley family recently announced that their 2 year old son Sam is now in remission from neuroblastoma! According to Sam’s mother Michelle, “Now Sam is in remission, and it’s great – and we’re positive for the future. But because we’re his parents, we have to have that hope with realism. He’s running about, he’s like a normal two-year-old, but we know that the cancer relapses in over 50% of cases.“ We are all pulling for you, Sam!fermanaghherald.com.

    Broncos’ Wes Welker Supports Girl’s Battle with Cancer, Autographs Her Head

    A celebrity chef cooking event at Children’s Hospital in Aurora, Colorado was recently held and the night was unforgettable! To show his support for 11 year old neuroblastoma fighter Delaney Clements, Denver Broncos’ receiver Wes Welker along with other celebrity chefs signed Delaney’s beautiful, bald head. Delaney says she’ll never wash her head again! A huge thank you to Welker and all those who donated their time to bring a smile to Delaney and other children at the hospital!bleacherreport.com.

    Ex-toffees help out Garden City girl’s foundation

    The Amelia-Mae Foundation held a night with ex-Everton and Wales goalkeeper Neville Southall and his former Everton team-mate Ian Snodin at Dukes Bar Grill restaurant in Queensferry. The event was held in memory of 2 year old Amelia-Mae whose battle with neuroblastoma came to an end in 2013. The event raised well over £250! Future events are being planned, one of which will be a head-shaving event! Keep up the great work!newsnorthwales.co.uk.

    Five–year–old baseball signee works to raise awareness for cancer research

    Neuroblastoma ”Superhero” Micah Ahern, 5, and his family participated in Fort Worth’s Neuroblastoma 5k Run and Walk for a Cure. The race brought out 125 participants and raised over $12,000. Currently, Micah is finishing up round 5 of chemotherapy. For more information about Micah and to keep track of this “Superhero”, please visit his Facebook page at https://www.facebook.com/pages/Praying-for-Micah-Ahern/143168165732233.tcu360.com.

    Grand opening in Braintree supports Prayers for Charlotte

    Stephen Marcus, the owner of Ben & Jerry’s at South Shore Place in Braintree, will use the store’s grand opening to support Prayers for Charlotte, which raises money for research grants as well as families battling neuroblastoma. Marcus says that he did not know Charlotte Rose Kelly who died from neuroblastoma in 2011 personally but said he has three children and will do anything for the people of Braintree. To learn more about future Prayers for Charlotte events, please visit prayersforcharlotte.org.Braintree.wickedlocal.com.

    Michelle’s French adventure to help children’s charity

    Michelle Jones is preparing for a 500km bike ride from London to Paris to raise awareness and funding for The Neuroblastoma Society after her cousin Molly Bird was diagnosed with neuroblastoma. Jones has raised £2,000 thus far. To donate to Jones’ ride, please visit www.doitforcharity.com/michelle65.banburyguardian.co.uk.

    Wishes do come true: Aiden Hyde’s journey of discovery to Nemo’s Barrier Reef home

    Aiden Hyde, 5, was diagnosed with neuroblastoma and endured six rounds of chemotherapy, surgery, a bone-marrow transplant, 12 rounds of radiation and six months on an immunotherapy clinical trial. His doctors just informed Aiden that he is in remission! Aiden was granted a wish through the Make-A-Wish Foundation and headed to Australia to “find Nemo;” but his wish does not stop there! Aiden will do snorkel training before an action-packed scavenger hunt starting at Cairns Tropical Zoo where he will search various animal enclosures to find pieces of a puzzle that will ­become a map of Nemo’s secret ­location. After finding more clues, he will take off in a helicopter to Green Island to board a boat to an outer reef and ultimately snorkel with a real life Nemo! Have a wonderful time, Aiden and we wish you the best!m.couriermail.com.au.


    You can sign up to receive these weekly articles in your email. Sign up below…

    Read more
  • 3 Apr

    This Week in Neuroblastoma – 04-03-14

    Numerous fundraisers this week, a couple family members being nominated for awards for their heroic dedication to a child battling neuroblastoma and an eye-opening article of the devastating consequences war has on children battling cancer.

    Here’s this week’s links…

    Kids – Why We Fight

    Non-Profits / Events / News

    Coffee morning to support Sam Shaw Appeal

    Who doesn’t like a cup of Joe first thing in the morning? Well, if you live in Hoddlesden get to the Carus Centre this Saturday morning and you can enjoy your favorite coffee and help Neuroblastoma fighter Sam Shaw! Any money raised but not needed will stay with the Neuroblastoma Children’s Cancer Alliance.lancashiretelegraph.co.uk.

    York shop raises money in memory of Jamie Inglis Appeal

    The Original Factory Shop raised £2,330 for the Jamie Inglis Appeal in aid of the Neuroblastoma Alliance. Jamie Inglis, 7, passed away last year after a courageous battle with Neuroblastoma. Jamie Inglis Appeal was originally created to help fund Jamie’s cancer treatment and all money donated after medical expenses are paid will go to help other children having neuroblastoma treatment. Great work Original Factory Shop!yorkpress.co.uk.

    Don a silly hat

    On May 16, 2014, everyone is asked to don a silly hat and make a donation in memory Neuroblastoma princess Madison Allan. Madison was just 7 years old when she died and fought cancer since she was 10 months old. Her family created the Maddi’s Butterflies which grant small wishes for children suffering from Neuroblastoma and other cancers. To make a donation or to learn more about Maddi’s Butterflies, please visit: http://www.maddisbutterflies.org.uk/lancashiretelegraph.co.uk.

    Going all purple to fight threat of childhood cancer

    Over 20 Sussex businesses, clubs, schools and churches will be going purple on Friday, April 4, 2014, to raise awareness for Neuroblastoma and to raise funds for the Neuroblastoma Children’s Cancer Alliance UK. To donate please visit http://www.justgiving.com/TurnSussexPurple.bexhillobserver.net.

    Cancer Patient Helps MSU Cut Down Nets

    Such a sweet article! Neuroblastoma fighter, eight year old Lacey Holsworth assisted Michigan State forward Adreian Payne cut down the nets Bankers Life Fieldhouse in Indianapolis to celebrate the Spartans’ Big Ten tournament title. We cannot thank you enough, Adreian for your continuous support of Lacey!lostlettermen.com.

    Cancer Takes Zacharia, A Syrian Child Caught Between War And Disease

    On March 13, TIMES Magazine ran an article of a four-year-old Syrian boy caught at the tragic intersection of war and cancer. Zacharia was diagnosed with Neuroblastoma last year and was undergoing treatment until the hospital he was at was destroyed. Zacharia and his family was forced to take a 2 hour bus ride to Damascus for treatment. Eventually, war made the trip impossible and Zacharia was forced to miss treatments. On March 17th, Zacharia died. We are very fortunate in the US to not have to endure such struggles. Please keep Zacharia’s family in your thoughts and prayers.keighleynew.co.uk.

    Second-time lucky for Yemeni patient

    Salim Abdullah, 9, became paraplegic two years ago practically overnight due to neuroblastoma. Salim and his father, Mohammed, traveled from Yemen to Bangalore for treatment. His initial treatment was successful, however, a year later Salim relapsed. His father brought him back to Bangalore for innovative treatment in which he went through a cyber knife treatment in the brain (where high dose beams of radiation are robotically delivered to a tumour) after which he had to undergo a bone marrow transplant along with chemotherapy. Today, Salim is cancer-free! Please keep Salim in your thoughts and prayers and pray that his cancer stays away. bangaloremirror.com.

    Boy with cancer uses Lego shopping spree to help others

    Aaron Maier, 10, has fought neuroblastoma for nearly half of his life; tragically, his cancer has stopped responding to treatment. The Children’s Wish Foundation granted Aaron his wish of a shopping spree to the Lego Store; however, instead of just buying Lego sets for himself, Aaron also purchased other toys for other children battling cancer. Aaron, you’re such an amazing kid. We are praying for you!cbc.ca.

    “Stompathon” zumba event to be held tonight in memory of Jamie Inglis

    A zumbathon is being held in memory of 7 year old neuroblastoma fighter Jamie Inglis as a campaign to ‘Stomp-Out Children’s Cancer’. Vicky Inglis Jamie’s mother, said: “When Jamie was poorly he asked the doctors to take out his angry cells and stamp on them so this event is particularly apt to remember him. I’d urge anyone to come down and participate or sponsor us.” We hope that the event is a huge success!yorkpress.co.uk.

    Father of Pride of Bucks winner urges people to nominate

    In 2013, nine-year-old Jennifer Sharp, was handed the Child of Courage prize and the whole audience was touched by her emotional story. Jennifer had looked after her brother Alex, who died of neuroblastoma last year when he was just five years old. Since his passing, Jennifer’s father, Ben has been encouraging others to share their story to get nominated for the prize. “It is great that people are recognized for the work they do and it’s great that others can come forward and nominate them,” says Ben. The Child of Courage prize is open the county’s bravest youngsters under the age of 16.getbucks.co.uk.

    United Hospital Center Hopes to Bring Music Therapy Program to the Cancer Center

    United Hospital Center offers many programs and services for cancer patients that can make the experience a little easier and now it hopes to add one more program to the center, but they need your help! UHC wishes to bring music therapy to their patients through the Livestrong Foundation’s “Community Impact Project.” There are 60 hospitals in the running for this music program but only 39 will be chosen. Please cast your vote for UHC by visiting: http://vote.livestrong.org/ . Contest ends April 11, 2014.wboy.com.

    Henry Allen’s mother Dawn, from Milton Keynes, shortlisted for Inspirational Mother Awards

    Dawn Allen was nominated for the Inspirational Mother Award for her work in helping brave son Henry, four, in his battle against neuroblastoma. Henry’s battle tragically came to an end in October 2013. Dawn set up the Henry Allen Trust, which is helping ‘create smiles’ for the families of children aged up to 18 after a cancer diagnosis. We hope to hear that Dawn wins this prestigious award soon!mkweb.co.uk.

    Trail Ride Fundraiser Planned

    There will be a benefit trail ride in Ohio on Saturday, April 5, for neuroblastoma fighter Joseph William “J.W.” Heil. There will be an auction as well as a hog roast following the trail ride. We hope there is a huge turnout for the event!republican-times.com.

    Runners Take on 5K to Help Bridgeport Child with Stage IV Cancer

    This past Saturday, Pro Performance in Monongalia County sponsored a 5K, where participants were fighting for more than just a first-place finish. Instead, it was all for a child’s fight against cancer. Jack Rollins, 3, was diagnosed with Stage IV Neuroblastoma last year. Jack has become a mini-superhero to those in his community which is why many runners donned capes and superhero costumes to run the race. You can donate to Jack’s cause by visiting https://www.giveforward.com/fundraiser/qvs3/prayers-for-jack?utm_source=facebook&utm_medium=fb_share_stream.share&utm_campaign=BA_FBshare&og_action=hug&t=3&fb_ref=1765737 or by visiting his Facebook page at https://www.facebook.com/groups/628758777184864/?ref=br_tf. wboy.com.


    Subscribe to our mailing list




    Read more
  • 19 Mar

    This Week in Neuroblastoma – 03-19-14

    This week we hear several parents making a plea for financial assistance to help cover the mounting medical bills to ensure their child receives every neuroblastoma treatment possible. We also see a lot of green with some wonderful St. Patrick’s Day fundraising events and we have a special guest appearance by the King of Rock ‘n Roll!

    Here’s this week’s links…

    Kids – Why We Fight

    Non-Profits / Events / News

    Family hope public appeal will help daughter beat cancer

    One and a half year old Alice Turner is battling neuroblastoma since December 2013. Alice’s parents are seeking a public appeal to help raise funding for the DFMO treatment offered in the United States. Treatment alone will will cost between €150,000 to €200,000. The Turner’s have set up a charity called A Chance for Alice to raise these funds. To learn more about how you can help Alice, please visit www.idonate.ie/achanceforaliceirishtimes.com.

    Kid’s life shouldn’t be a trial by cash

    Helplessly watching and trying to bring comfort to their child battling cancer would seem to be enough, however, many parents are also forced to balance caring for the needs of their child and finding means to pay for their child’s potentially life-saving treatments. Ground-breaking trials are already going on in the United States forcing overseas families to come up with hundreds of thousands of pounds to come to America to save their child’s life. This is the reality for the parents of Alice Turner, Clodagh Daly, Donal Parsons, Lily-Mae Morrison, Merryn Lacy, Robyn Smith and others. More must be done to assist these families and ease their financial burden. Money shouldn’t stand in the way of saving these children’s lives.irishmirror.ie.

    Victorian cancer patient’s birthday card wish

    All neuroblastoma warrior Rafael Moraes wants for his tenth birthday is cards. After making his request on his Facebook page, Rafael’s Warriors, his post was shared numerous times and the cards started coming in from Canada, England, Brazil, Germany and Australia. You can send Rafael a birthday card to PO Box 1617 Werribee 3030 or go to his Facebook page Rafael’s Warriors.au.news.yahoo.com.

    Hair hit the floor at St. Baldrick’s fundraiser

    St. Patrick’s Day is all about wearing the green. St. Baldrick’s is all about wearing a cape—a barber’s cape that is! This past Saturday, numerous people came together to shave their locks to raise awareness and funding for childhood cancer research. St. Baldrick’s was hosted by Rick and Shannon Meyers and their families in memory of Gavin Meyers, their son, who died shortly after his first birthday on June 27, 2008, of neuroblastoma. We are so proud of the over 300 people who participated in such an incredible event!ellwoodcityledger.com.

    Shamrock day for Hoddlesden’s Sam Shaw

    A St. Patrick’s Day event was held for neuroblastoma fighter Sam Shaw, 5, this past weekend. The event was held to raise funding for Sam’s treatment which is only available in the US. We hope this weekend’s event was a complete success!lancashiretelegraph.co.uk.

    Idle Elvis is in the building!

    Elvis is in the building! Well, the Idle Elvis will be. The tribute performer will be appearing at Big Soup which is hosting the concert to raise money for 8 year old neuroblastoma fighter Callum Ingham. Thank you, thank you very much for your support!keighleynew.co.uk.

    ‘Run for Charlotte’ race set for April 27 in Braintree

    The 4th annual Run for Charlotte road race to benefit neuroblastoma research and relief for families fighting cancer is scheduled for Sunday, April 27. The race is in loving memory of Charlotte Rose Kelly who was diagnosed with neuroblastoma at age 2 in 2009. Despite extensive treatments, including chemotherapy, radiation and two stem-cell transplants, the disease relapsed and Charlotte died Dec. 7, 2011. To register for the race, visit prayersforcharlotte.orgBraintree.wickedlocal.com.

    Family overjoyed as Fraja Simpson’s rare cancer vanishes

    Absolutely incredibly! Fraja Simpson, 6, has been battling neuroblastoma for 15 months and doctors are baffled as her disease miraculously disappears! Consultants at Leeds General Infirmary said they are at a loss to explain why Fraja is suddenly free of the aggressive disease or why it has cleared within nine months of her tumour being removed. The family remains cautiously optimistic as relapsed neuroblastoma is extremely common. We are so excited for you, Fraja and are praying for you!thenorthernecho.co.uk.

    Toddler needs your help to beat cancer

    Charlie Grantham’s parents are making a desperate plea for the public’s help. Charlie, 2, was diagnosed with neuroblastoma in November 2013, after his mother noticed that he had stopped eating and his abdomen had doubled in size. NCCA UK chief executive Bettina Bungay-Balwah said: “We’re still working tirelessly to raise funds for new UK trials and bring promising international treatments to the UK, but unfortunately some families and friends are left with no other option but to fundraise for specialist trialed treatment when needed. I would urge anybody reading this to give what they can to help Charlie beat this aggressive cancer.” To make a donation visit justgiving.com/NCCAUKCharliesJourney.marketrasenmail.co.uk.

    When thank you is not enough (Letter

    Diane Patterson writes a very heartfelt letter detailing her gratitude for her community that embraced her 9 year old great-niece Alexa Dacres who was diagnosed with neuroblastoma. Diane continues to extend her thanks to all those who attended fundraisers and donated towards Alexa’s mounting medical bills. In closing, Diane shares that Alexa’s latest scans reveal that she is still NED. Please continue to pray for Alexa.caledonenterprise.com.


    You can sign up to receive these weekly articles in your email. Sign up below…


    Read more
  • 12 Mar

    This Week in Neuroblastoma – 03-12-14

    Cancer is not a one man fight; it takes a full army of supporters and encouragers. This week, we are delighted to share several amazing stories of communities standing strong behind the tiniest cancer fighters dedicated to raise awareness and funding for neuroblastoma.

    Though there’s a lot of uplifting and promising stories this week, we also extend our deepest sympathy to the Christiansen family who’s 3 year old son was laid to rest after his heroic battling with neuroblastoma came to an end. Our prayers are with you, Christiansen family.

    Here’s this week’s links…

    Kids – Why We Fight

    Sadie Smith had cancer this past summer, but is doing far better today

    Meet the adorable Sadie Smith! This tiny tot was taken into the hospital when she was 10 months old after having a severe ear infection. However, after further testing it was revealed that Sadie had a tumor, neuroblastoma to be exact. Sadie underwent chemotherapy for months and throughout the process the family prayed and prayed for Sadie to be healed. Sadie’s neighbors began to hold fundraisers to help offset the family’s medical expenses and were able to raise $30,000 for the family! Today, Sadie is in remission! We are praying for you Sadie and we humbly thank the Murfreesboro community for their dedication to raising awareness and funding for Sadie!wgnsradio.com.

    3-year-old ‘firefighter’ Daniel loses cancer battle

    3 year old Daniel Christiansen died peacefully after a heroic battle with neuroblastoma. Before his passing, Daniel was made an honorary firefighter in stations worldwide! He brought together firefighters from around the world after his parents asked North Lincoln Fire & Rescue to let him ride in a fire engine. They instead made him an honorary firefighter and shared his story. Please keep the Christiansen family in your thoughts and prayers. If you would like to extend your sympathy to the family, you may do so by visiting Daniel’s Facebook page at ‘Firefighters for Team Daniel.’nwcn.com.

    Non-Profits / Events / News

    Record attempt to help Leeds girl with rare cancer

    Over 500 people took part in a welly walk around Roundhay Park over the weekend in a record attempt to raise money for 3 year old Kendal Middleton Jessop who is battling neuroblastoma. Kendall relapsed last month, however, her cancer seems to be solely limited to her leg. Kendal’s parents have set up a fundraiser aiming to cover the costs of treatment in the US should Kendal require healthcare not currently available in the UK. For more information about Kendal’s condition and to donate to the appeal visit www.justgiving.com/kendalmiddletonjessopappeal.yorkshireevningpost.co.uk.

    Family of girl with rare cancer appeal for help to raise £120,000 to send her to US for treatment

    Merryn Lacy, 4, was diagnosed last August with Stage four neuroblastoma and has just completed a gruelling 12 weeks of chemotherapy. Merryn’s mom created an appeal in hopes of raising over £120,000 for her daughter’s specialized treatment in the US. To assist the family in raising the funds for Merryn’s cancer treatment, Olympic gold medal winner, boxer Katie Taylor donated her Olympic torch to be auctioned off. How cool is that?! To learn more about Merryn or to donate to her appeal, please visit her Facebook page at: https://www.facebook.com/merrynlacybelfasttelegraph.co.uk.

    Ansonia bakery carries on sweet Mardi Gras tradition

    Mardi Gras is the time for beads and celebration, but for Eddy’s Bake Shop it’s a time to hold its annual paczki-eating contest. This year’s winner, Marcus Bartone of Derby, said he entered the contest in memory of his 7 year old daughter Sydney who died from neuroblastoma a few years ago and to raise awareness for this horrific disease. We are deeply sorry for his loss but want to congratulate him on his win!nhregister.com.

    Experts reveal new test to target treatment for deadly child cancer

    Researchers at Leeds University have discovered that a simple blood test might be able to pinpoint patients who are unlikely to respond to neuroblastoma treatment. Study leader Prof Sue Burchill, from the School of Medicine at Leeds University, said: “The blood test we are developing can help identify children with the most aggressive form of the disease early on, so they can be offered other experimental treatments. This not only gives them the best chance of living longer, but will help speed up the development of much needed new treatments for this group of children.” We are very hopeful in this study!yorkshirepost.co.uk.

    Teacher trains like a Warrior to raise cash to support sick child

    Scott Bowman will brave freezing temperatures and dangerous obstacles to complete the Warrior Beach Assault challenge on March 29 all for five year old neuroblastoma fighter, Fraja Simpson. Fraja’s parents, Garry and Michelle, are trying to raise the £500,000 needed for the life-saving treatment in the US. Scott was inspired to raise money for the Fraja Ellie appeal as his mother, Jill, is close to Fraja’s grandparents. Scott said: “So I want to help and even if I don’t meet my target of £1,000, if I raise some awareness for the appeal that would be great.” We thank you, Scott for your compassion and dedication to help Fraja and raise awareness for neuroblastoma! To sponsor Scott and the team visit: www.justgiving.com/fraja-ellie-appealhexhamcourant.co.uk.

    Family’s bid to raise cash to pay for two-year-old Charlie’s cancer treatment

    The parents of two-year-old Charlie Grantham have launched an appeal in a bid to pay for his pioneering neuroblastoma cancer treatment. Charlie’s mom, Chrissy Coggan said her world stopped when she was told that her son had cancer, “All I could think was this was it, I was going to lose my little boy. Why him? What had he done to deserve this? He hasn’t had a life and it’s not fair.” Chrissy continues to stress the importance of raising awareness and funding for Charlie and neuroblastoma. To make a donation for Charlie’s appeal, please visit http://www.justgiving.com/NCCAUKCharliesJourney.lincolnshireecho.co.uk.

    Lacey Holsworth to join Adreian Payne on the court for senior day

    A couple years ago, there were questions about whether 8 year old Lacey Holsworth would ever walk again; however, she’ll do so in front of thousands at Breslin Center. Lacey will be joined by Michigan State’s Adreian Payne for his senior day ceremony after the MSU-Iowa basketball game. Lacey first met Adreian when he and his teammates came to visit her at the hospital where she was receiving treatment. She kept building a bond with Payne, who has become like an adopted son to the Holsworth family. The Holsworth family is planning to start a foundation in Lacey’s name called “One Step Closer,” a reference to the way she fought to regain the ability to walk. Please continue to pray for Lacey as she continues treatment. lansingstatejournal.com.

    A Father’s Duty: Jack Pavlat Says It’s His Job to Keep Daughter Suzie’s Memory Alive

    “Suzie and I only spoke about death once, and at that time, she said, ‘Daddy, if I die, will people remember me?’ And I told her it would be my job to make sure she is remembered.” A father who was forced to bury his 11 year old daughter due to neuroblastoma shares their story 12 years later. Since Suzie’s passing, her father Jack Pavlat has dedicated his life to keeping his daughter’s memory alive. The Pavlat’s are still very active at St. Jude where their daughter received treatment. Jack and his wife serve on the family advisory council, and Jack often speaks to groups at the St. Jude Country Cares conference. His reasons for being such a great advocate are altruistic — the man wants to whoop cancer’s butt as bad as anyone — and personal. Our hearts go out to the Pavlat family.tasteofcountry.com.

    Watkins, Lourie, Roll & Chance Gives Back

    The partners of Watkins, Lourie, Roll & Chance, PC have a long history of service to charitable organizations. Tragically, Patrick Chance, the son of Stephen and Erin Chance, passed away on January 9, 2012 – his ninth birthday. Patrick valiantly fought neuroblastoma since he was 3 years old. Not long after Patrick was diagnosed, Stephen and Erin formed Press On, a fund dedicated to curing neuroblastoma. Press On has raised approximately $2,000,000 and has directed more than $1,500,000 to neuroblastoma and AML research being conducted at Children’s Healthcare of Atlanta, Memorial Sloan Kettering Cancer Center, Children’s Hospital of Philadelphia and St. Jude Children’s Research Hospital. Press On will be making additional grants in the coming weeks, and its mission will never end until cures for these deadly pediatric cancers are discovered. digitaljournal.com.

    New Cancer Treatment Offered in Minnesota Gives Families Hope

    For 20 year old Raymond Yeager, who was diagnosed with neuroblastoma when he was 14 years old, MIBG therapy may be the treatment needed to finally kill his cancer. Yeager is the first patient at Amplatz Children’s Hospital to receive MIGB therapy. According to Yeager’s doctor, Dr. Emily Greengard, scans show that Yeager’s neuroblastoma has not changed since before the MIBG treatment, but his symptoms have improved. She says she is encouraged by the results because she thinks the treatment prevented Yeager’s neuroblastoma from progressing further. We hope that MIGB therapy will start shrinking and kill the neuroblastoma cells without causing too much harm to the body.kstp.com.

    Going Bald for St. Baldricks

    More than $3,000 was raised when nearly 20 people decided to shave their head during a St. Baldricks’ fundraiser. After a close friend’s daughter was diagnosed with neuroblastoma, Christine Lewis decided to organize a shaving event to support her friend’s daughter, as well as the St. Baldricks Foundation. “The foundation does amazing work. They fund great research and they develop a lot of new studies and keep a lot of children alive,” said Lewis. Anyone interested in hosting a St. Baldricks shaving event or want to shave their head, please visit www.stbaldricks.org. wlfi.com.


    You can sign up to receive these weekly articles in your email. Sign up below…


    Read more
  • 5 Mar

    This Week in Neuroblastoma – 03-05-14

    This week a three year old superhero fights his final fight against neuroblastoma, and our tears are with the family. Also, a mom sells cookies to raise funding for neuroblastoma; and there is a new and promising treatment for children battling this horrible disease.

    Here’s this week’s links…

    Kids – Why We Fight

    Huntersville toddler, honorary firefighter dies

    Three year old Carter Dang, a.k.a. Super Carter, died at home Thursday afternoon following his battle with Neuroblastoma. The Huntersville Fire Department had made Carter an honorary firefighter just weeks before Carter’s passing. Please keep the Dang family in your thoughts and prayers.wcnc.com.

    Non-Profits / Events / News

    Anya Bentham: Two-year-old ‘is growing into the little girl she is’

    Anya Bentham, 2, was diagnosed with neuroblastoma in October 2012. Shortly after her diagnosis, Anya’s parents started an appeal to raise funding in the chance that she relapses and will need to travel to the US for further treatment. “It feels like there’s never any escape. It will take years for us to believe that Anya is completely clear of the cancer – we live in fear every day of a little sniffle or ache,” says Anya’s father Graeme Bentham. Currently, Anya is doing very well and was declared NED last summer.dailypost.co.uk.

    Nailers, local businesses plan help for Hines

    The Wheeling Nailers hockey team, Figaretti’s Restaurant and the Rotriga family have teamed up for a ‘Hope for Hines’ event. The Nailers will donate a portion of the proceeds to the Rotriga family whose two year old son Hines was diagnosed with neuroblastoma in December. Thank you Nailers for your support!wtov9.com.

    Cookies for Kids’ Cancer fights for the vulnerable

    A year after her son was diagnosed with neuroblastoma, Gretchen Witt launched her nonprofit, Cookies for Kids’ Cancer, which helps companies raise funds through sports tournaments, fun runs and bake sales. More than once, Ms. Witt and Cookies for Kids’ Cancer has been the beneficiary of a baker trying to break a Guinness world record. In the past five years, Ms. Witt has raised $8 million. Her son, Liam, died in 2011 at age 6.crainsnewyork.com.

    Four-year-old now in remission

    Andrew Remund, 5, has been fighting stage IV neuroblastoma since September 2012. Andrew has had six rounds of chemotherapy and two surgeries between his fifth and sixth rounds of chemo. A fundraiser has been set up at Chili’s in Yuba City in which Team Andrew will receive 15% of the day’s donations. Currently, Andrew is NED. Keep up the fight, Andrew!gridleyherald.com.

    UTHSCSA Researchers at the Center of Improved Lab Screening Techniques For New Neuroblastoma Therapies For Children

    Side effects from cancer treatments are very harsh for children. For children fighting neuroblastoma, a new report has come out that explains the critical role of microRNAs in regulating neuroblastoma development — a finding that could pave the way toward developing new, more effective therapeutic possibilities for the disease that would lead to better outcomes and fewer side effects. MircoRNA-based therapy targets only the malignant cells in the body. This promising therapy is also much easier on the youngest cancer fighters. We are eager to find out more about this new neuroblastoma treatment!bionews-tx.com.

    “Our little girl had a tumour the size of a grapefruit but we had no idea”

    A parent’s worst nightmare came true for a Drogheda, Co Louth family when they found out that their 17 month old daughter had a grapefruit sized tumor on her kidney. Baby Alice Turner was diagnosed with neuroblastoma in December 2013, and has begun an intense 18 month treatment course. Alice’s parents have set up A Chance For Alice Trust to raise funds for Alice’s treatments. To donate to Alice’s fund, please visit: www.idonate.ie/achanceforalice or see her Facebook page www.facebook.com/achanceforalice. irishmirror.ie.


    You can sign up to receive these weekly articles in your email. Sign up below…


    Read more
  • 4 Mar

    This Week in Neuroblastoma – 02-28-14

    This week we hear four wonderful words: No-Evidence-of-Disease! And we hear about some generous people and organizations dedicated to raising funding for neuroblastoma fighters! What a great week!

    Here’s this week’s links…

    Kids – Why We Fight

    Gage and Jace Maloney

    This week 6 month old twin neuroblastoma brothers Gage and Jace Maloney received some amazing news-they were declared NED (no evidence of disease)! Gage and Jace were diagnosed with stage IV neuroblastoma the moment they entered into the world on August 12, 2013. These two brothers are the 10th documented case of identical twins with neuroblastoma! Keep up the fight, Gage and Jace! We are so ecstatic to hear this news! To following Gage and Jace’s journey, please visit their CaringBridge page at: http://www.caringbridge.org/visit/gageandjacemaloney Caringbridge.org.

    Non-Profits / Events / News

    Girl, 4, meets rugby heroes as cancer trial funds bid kicks off

    Merryn Lacy, 4, was diagnosed with neuroblastoma in 2013 met her rugby heroes this past week during the team’s training session. A campaign has been started to raise money for Merryn’s treatments which she travels from Dublin to America every three months. The target goal is to raise €500,000 which would cover treatment if Merryn relapses. Find out more about Merryn’s fight or ways you can donate to her medical expenses on her website Merrynlacy.com or on www.facebook.com/merrynlacy. irishmirror.ie.

    Comment of the Day: ‘harrisburg tax payer’ is grateful for the Four Diamonds Fund

    The Four Diamonds Fund paid for all of a 7 year old neuroblastoma fighter’s treatments and helped the family receive a room at the Ronald McDonald House while their son was undergoing treatment. Thank you, Four Diamonds Fund for your support!pennlive.com.

    Mum of little battler Bradley Lowery ‘gobsmacked’ by Pride of Hartlepool nomination

    Gemma Lowery has always been there for her son Bradley throughout his fight with a neuroblastoma and was nominated for a Pride of Hartlepool Award. Gemma, who spends six days a week at Bradley’s bedside during treatment, was nominated by Mark Rycraft who praised her “strength and courage in the face of continuing obstacles relating to her son Bradley Lowery. A fundraiser for Bradley has also been set up for £500,000 for treatment overseas in the event he should suffer a relapse. Congratulations, Gemma and best wishes to you, Bradley!hartlepoolmail.co.uk.

    Fairhaven restaurant holds benefits for community causes

    Lori Truehart will be hosting a benefit this Saturday at her restaurant for 16 month old Athyn Sousa, who is battling Stage 4 neuroblastoma. Truehart said when she heard a radio story that Sousa’s parents had to quit their jobs to care for him, she decided to act. “It’s very easy to turn your head to a situation if it’s not you,” she said. “But I think you have to give back because there’s always someone who has it worse than you. southcoasttoday.com.


    You can sign up to receive these weekly articles in your email. Sign up below…

    Read more
  • 4 Mar

    Ezra Matthews

    Ezra was diagnosed with stage 4 neuroblastoma on October 4th, 2009 at the age of 13 months.

    The day before Ezra’s 2nd birthday the Matthews family discovered he’d relapsed already, less than 4 months out of stem cell transplant. This meant his neuroblastoma was very aggressive, and there was no current cure. They were slated to start a trial using a drug called Nifurtimox, but Ezra’s condition began deteriorating rapidly, and he was unable to qualify for the trial – literally less than an hour before he was about to get the first pill.

    On November 8th, at 2:50am, Ezra passed on. The neuroblastoma had kept growing, and although they did one last round of chemo in Orlando, it didn’t stop, and early early on a Monday morning Kyle and Robyn lay in his bed with him and held him as he died. We miss him.

    Read more
  • 3 Mar

    Lily-Mae Morrison

    On the 1st of June 2012, life as we knew it ended when our beautiful daughter, Lily-Mae was diagnosed with Stage IV neuroblastoma just 6 weeks after her 4th birthday. Lily-Mae hadn’t been particularly ill, she’d had a pain in her back for about two weeks, but it wasn’t a persistent pain and she went to school & her ballet class as normal. We brought her to the doctor expecting the diagnosis to be a kidney infection. Within two days we were told she had neuroblastoma, two days later, when transferred to our children’s oncology ward in Dublin, we were told that the cancer was stage IV.

    Read more
Page 1 of 1312345...10...Last »