A week’s worth of encouraging news! This is the kind of stuff we love to see (and share!). Here’s this week’s links… Kids – Why We Fight Wyatt Glastetter 2-year-old Wyatt Glastetter of Jackson, MO has been battling NB since he was 18 months old. After a misdiagnoses from doctors and an inexplicably broken femur, [...]
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The NMTRC (Neuroblastoma & Medulloblastoma Translational Research Consortium) is a group of 18 universities and children’s hospitals headquartered in Grand Rapids, MI which offer a nationwide network of childhood cancer clinical trials. The group is chaired by Dr Giselle Sholler. These trials are based on the research from a group of closely collaborating investigators who are linked with [...]
Today marks the day we’ve been without Ezra as long as we were with him. 800 days from the day he died, after living exactly 800 days. It’s a strange day for us. We thought it would be fitting to do Because of Ezra’s giving for 2012 on this day – this is only something [...]
For New Years Eve, Robyn and I went out with some close friends of ours to the Tampa Convention Center, where there would be a “ball drop”, fireworks, and some music. 2012 had been a hard year – walking the line between grief that burns so icily deep it pauses your very will to move [...]